The time has come for full disclosure. (You might want to sit down for this.)
I do not eat gluten, soy, dairy, eggs, or yeast.
Are you okay? Do you need a pillow? A gin & tonic? It's true -- I do not eat gluten, soy, dairy, eggs, or yeast. In more salivary terms, I do not eat bread, ice cream, cheese, pizza, cake, or beer. Restaurants are minefields; I can count on one hand the number of times I've dined out in the past 18 months.
I know you're wondering what in God's name would provoke such lunacy, so here's some backstory. Early in 2006, my trips to the bathroom -- well, let's just say they became less like trips to the library and more like trips to the Porcelain Dungeon of the Macabre. It wasn't like the occasional bout with Taco Bell, either. I was sick and pervasively so.
By July, I'd lost nearly 20 pounds. I itched my rashy scalp incessantly, slept on a heating pad to ease my excruciating back pain, and lugged the weight of malaise from doctor appointment to doctor appointment, sobbing voluptuous tears into the starched, cartooned smocks of more nurses than I care to admit. In a six month period, I encountered the same confused expressions on the faces of many medical professionals -- three gastroenterologists, two primary care physicians, a physical therapist, and an allergist. I underwent a colonoscopy, an endoscopy, allergy tests, blood tests, and an ultrasound. I took myriad pills for myriad symptoms. Still, no one provided me with anything more than a shudder and a hunch.
Through all of this I kept a food journal which, along with the discovery of a mail-order stool testing lab in Texas, turned out to be my saving grace. One night in September, as Jenn read my food journal before bed, she pieced together patterns that, ultimately, compelled us to gamble on the lab in Texas. I had already squandered over $1,500 on deductibles and copays, so what was another $550 for an unpatented, unresearched shot in the dark?
And so it happened that I mailed my poop to Texas.
The results arrived the night before my 29th birthday. I had anticipated being gluten intolerant because my mom has celiac disease. I did not anticipate the full monty diagnosis of intolerance to gluten, soy, dairy, eggs, and yeast.
I eliminated all of these items from my diet right away. The most severe symptoms evaporated within the first few weeks; by the following summer, I felt better than I'd ever felt in my life.
I won't deny the emotional toll of this life change, nor will I belabor it. Yes, my social life has become more confined as there are some places where it's not as easy to smuggle in containers of allergen-free food. Yes, our food budget is through the roof because specialty foods are in lower demand in this country. On the other hand, I don't have to take medications. I don't have to lose my hair from chemo or brace myself against the rancor of radiation. My ass does not get walloped weekly by dialysis, nor is it tethered to a bedpan. I am alive. I am well.
What remains most difficult -- even more difficult than the absence of pizza in my life -- is the refusal of some people to fathom that I don't eat gluten, soy, dairy, eggs, or yeast because, as they say, they could never do it. It's very simple, I tell them. Either I eat these things and live miserably, in complete denial of the countless more serious illnesses that develop from food intolerances, like osteoporosis, cancer, and liver disease, or I don't eat these things and live healthily, more energized and more balanced, an homage to this vessel of mind and spirit called body.
Or, in less salivary terms, either I poop water and die a slow painful death -- or I don't.
While many people accept and respect this reality of my life, others just can't get past the food thing. And, frankly, while I am a patient bird overall, my innards smolder when someone throws an endless pity party on my behalf. Please do not pity me. Please do not feel bad that I cannot eat a Big Mac. There are far sadder things in the world. And there are still countless things I can cram down my hole -- fruits, meats, vegetables, rice, and many mainstream food products come to mind.
It's just a matter of reeducation, preparedness, and creativity, which is really no problem at all, because I am alive and well.
[Note: Food intolerances like mine are drastically undiagnosed. For example, it takes ten years on average to diagnose gluten intolerance. If you have questions about symptoms or similar medical mysteries, I'm more than happy to share what I've learned through research and experience.]
Wednesday, April 16, 2008
What are things we cram down our holes.
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8 comments:
Wow, good for you for persevering and finding the cause to your troubles. I'm glad to hear you are feeling better and have the will power to keep yourself healthy!
I too have gone through a few of those tests and I can relate to your discomfort.
My official 4th version of my response. I'm now completely off my rocker as how to respond to this:
What remains most difficult -- even more difficult than the absence of pizza in my life -- is the refusal of some people to fathom that I don't eat gluten, soy, dairy, eggs, or yeast because, as they say, they could never do it.
What the _____!?!
We live in a society where denying yourself is a slice of pepperoni is like flagellating yourself. It seems to me that in your situation EATING the pepperoni is the act of punishment here.
Consumer culture... grmph hmmph... overspending... grrr... Affluenza... "insert your words here"... (Brought to you by a hypocrite on this topic whose trying to reverse the trend)
Glad to hear your feeling better!
-Mike
I have a number of friends who have seen an area holistic nutritionist who have undergone significant life changes because of food allergies. It is amazing how simple health can be when we treat the real problem, rather than just dealing with the symptoms. What we put into our bodies matters - beyond weight and BMI and basic nutrition. Interesting stuff. There are so many people who do better off of wheat and dairy. So so so many people. But there is so so so much money to be made from prescription drugs and Western medicine, from beauty products for problem skin etc. Sigh. As the previous commenter said - consumerism.
Anyways - I don't think you're crazy, not at all. I have a friend who doesn't eat any of what you, nor citrus, corn or grains of any kind. Hard to wrap my brain around, but I see her do it and I know what it means for her health.
:)
My head is spinning.
That's probably from the beer, though.
You said something about not being able to drink beer, right?
;)
I wish they gave out real awards for perfect sentences, because this?
"And so it happened that I mailed my poop to Texas."
Would so win.
This is a great post (naturally).
I am right there with you. Fish makes me die! Really fast. It was and is hard to get people to accept this!
I, too, am allergic to soy. I have such a long list of foods I can't eat and the ones I "shouldn't" eat (because the reaction, though not as severe as the first-list foods, isn't pleasant) ... and people can never believe that I'm allergic to these things. "Who's allergic to apples?" "Oh come on, what would really happen? Carrots are good for you." That sort of malarky. Feh.
So glad you identified what was hurting you so you could reverse the situation.
(I am insanely, 7th-grade-ish-ly flattered that you've added me to your blogroll!)
I just got tested! Thank the good fucking lord it came back neg. I don't know how you do it? The scary thing is I'm ten days into a high protein diet (including beer as I'd rather not go there) and I'm not sick. Scary. It runs in my family. I'm taking large doses of denial...
Maybe I'd better mail my poop. Then I can cross that off of my bucket list!
I had a roommate that had Celiac disease and she insisted on taking down the customary 5 pack and a pound every Tuesday. Needless to say, she never gained weight because she was fucking voluntarily malnourished. Of course, I might be bitter because it was my job to clean the bathroom.
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